patients, neurological

The aim of the research was to determine differences in attitudes to ethics aspects of end of life care among patients with progressive neurological diseases (PND) and their family member. The attitudes were assessed with APND-EoLC questionnaire (The Attitudes of Patients with PND to End-of- Life Care). This cross-sectional study comprised 188 participants, patients with PND (multiple sclerosis, Parkinson disease, Huntington disease) from the Czech Republic and their family member. There were significant differences (paired Wilcoxon test) in the domains “control over end of life” (p=0.0002; patient’s score: mean=73.6; SD=15.0; families’ score: mean=67.1; SD=16.4) and “keeping patients alive” (p=0.0001; patient’s score: mean=61.9; SD=16.2; families’ score: mean=68.5; SD=15.4).