palliative care

Aims: The aim of the study was to determine the effect of a neuropalliative care intervention on quality of life and symptom intensity in patients with selected PND. Methods: This randomized controlled trial included 120 patients (interventional group: 65; control group: 55) who meet following criteria: selected neurological disease (RS, PD, MNS); age>18 years; informed consent; PPS≤70. Patients from the intervention group were offered care of multidisciplinary palliative team (doctor, nurse, social worker, psychologist, chaplain, speech therapist, physiotherapist, ergotherapist). For the data collection, a scale for the evaluation of 13 symptoms (scale 0-10) and a questionnaire for assessing the quality of life of patients with PND were used. The second measurement took place after three months. Comparison between the first and second measurements was performed using the Wilcoxon test. Results: After three months, patients in the intervention group improved their health score (p <0.001) and overall quality of life (p <0.001), and improved 9 out of the 13 symptoms. No statistically significant differences were found in the control sample. Conclusion: The introduction of a multidisciplinary team consultation as part of a neuropalliative and rehabilitation approach has led to improved overall quality of life assessments, subjective health assessments, and most of the symptoms evaluated by PND patients.

Aims: The aim of the study was to determine the effect of a neuropalliative care intervention on quality of life and symptom intensity in patients with selected PND. Methods: This randomized controlled trial included 120 patients (interventional group: 65; control group: 55) who meet following criteria: selected neurological disease (RS, PD, MNS); age>18 years; informed consent; PPS≤70. Patients from the intervention group were offered care of multidisciplinary palliative team (doctor, nurse, social worker, psychologist, chaplain, speech therapist, physiotherapist, ergotherapist). For the data collection, a scale for the evaluation of 13 symptoms (scale 0-10) and a questionnaire for assessing the quality of life of patients with PND were used. The second measurement took place after three months. Comparison between the first and second measurements was performed using the Wilcoxon test. Results: After three months, patients in the intervention group improved their health score (p <0.001) and overall quality of life (p <0.001), and improved 9 out of the 13 symptoms. No statistically significant differences were found in the control sample. Conclusion: The introduction of a multidisciplinary team consultation as part of a neuropalliative and rehabilitation approach has led to improved overall quality of life assessments, subjective health assessments, and most of the symptoms evaluated by PND patients.